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I am Only Human
Yesterday I was sitting on my lounger next to the pool watching my 6 year old son and my 5 year old nephew swim together… I’m amused by their imagination as they make up random scenarios to act out together. It is early September and the weather is very mild. It is a comfortable […]
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Feeling Restless
*This was written a few weeks ago. I’m finally publishing it now. I feel restless. My mind craves something, but I can’t pinpoint it. It’s like my brain is starving for stimulus. I want to do lots of things but I can’t quite figure out what. I’m trying some new things hoping it’ll satisfy my […]
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What is this Strange Feeling?
I’ve been feeling strong. I’m feeling good! I feel amazing! I’m trying not to get too attached, but I truly enjoy each day of feeling good. I’m exercising, learning, having fun, being active, …acting normal. I’m even walking more than I have in years! I have a theory for my surprising strength and overall wellbeing. […]
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Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by […]
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Not a Happy Camper
*This post was written a week ago. I finally had time to post it today. I woke up a few days ago with a UTI and have been a mess ever since. The last few days I really struggled with my energy and have spent much of my time laying on the couch napping. Today […]
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Ride the Wave…
I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This still […]
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Rebirth after a Flare
I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I come […]
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Happy 420 Everyone!
Today is April 20th, aka 420, aka the day of celebration for stoners everywhere. I think this is a good time to talk about a subject that is becoming less taboo in recent times. Marijuana, pot, weed, 420, cannabis, reefer, grass, and the many other names that are used to describe a delightful little plant […]
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Living Life 2 hours at a Time
There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much. […]
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My Not-So-Happy Birthday
Tomorrow is my 40th birthday. I have mixed feelings about this. In the last 10 years or so, my birthday brings me sadness. There wasn’t any particular event that permanently ruined my special day. I try to be happy about the celebration of another year of life, but there is always a darkness, a heaviness […]
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Surviving As Mom 