I am Only Human

Yesterday I was sitting on my lounger next to the pool watching my 6 year old son and my 5 year old nephew swim together…   I’m  amused by their imagination as they make up random scenarios to act out together.  It is early September and the weather is very mild.  It is a comfortableContinue reading “I am Only Human”

Not a Happy Camper

*This post was written a week ago. I finally had time to post it today. I woke up a few days ago with a UTI and have been a mess ever since. The last few days I really struggled with my energy and have spent much of my time laying on the couch napping. TodayContinue reading “Not a Happy Camper”

Rebirth after a Flare

I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I comeContinue reading “Rebirth after a Flare”

Living Life 2 hours at a Time

There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.Continue reading “Living Life 2 hours at a Time”

My Not-So-Happy Birthday

Tomorrow is my 40th birthday. I have mixed feelings about this. In the last 10 years or so, my birthday brings me sadness. There wasn’t any particular event that permanently ruined my special day. I try to be happy about the celebration of another year of life, but there is always a darkness, a heavinessContinue reading “My Not-So-Happy Birthday”

Consumed by Self Loathing

I decided today to make a list of the things I like about everyone in my family. I made a nice long list for each of my kids and my husband. I listed all the things I love and find special about each of them. It made me smile to think of all the waysContinue reading “Consumed by Self Loathing”

It’s Only Hair…

…Except it’s so much more than that. Hair is such an important part of one’s identity. When you look at someone, you immediately notice a few things. Their face, their clothes, and their hair. Some people keep the same hair their whole life. Others change it frequently. They experiment with color, length, and various styles.Continue reading “It’s Only Hair…”

Finding Happiness

I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise IContinue reading “Finding Happiness”

The All Too Familiar Sjogren’s Flare

For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. SomeContinue reading “The All Too Familiar Sjogren’s Flare”

Imprisoned Again

As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUSTContinue reading “Imprisoned Again”