Consumed by Self Loathing

I decided today to make a list of the things I like about everyone in my family. I made a nice long list for each of my kids and my husband. I listed all the things I love and find special about each of them. It made me smile to think of all the waysContinue reading “Consumed by Self Loathing”

The All Too Familiar Sjogren’s Flare

For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. SomeContinue reading “The All Too Familiar Sjogren’s Flare”

Chronic Illness Doesn’t Rest for Christmas

Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I wokeContinue reading “Chronic Illness Doesn’t Rest for Christmas”

Foggy…

I’m very scattered today. Having trouble concentrating. I have a million tasks running through my head… things on my To-do list, but I can’t seem to get my act together to make it happen. I’ve walked in various rooms with intentions of doing something, then aborted mission and went back to my safe place onContinue reading “Foggy…”

Snow Day!

Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such aContinue reading “Snow Day!”

Learning How to Save Myself…

I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearlyContinue reading “Learning How to Save Myself…”

Leveling Up in the Disability Game

Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. IContinue reading “Leveling Up in the Disability Game”

Today was a Good Day

I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laidContinue reading “Today was a Good Day”

Another Friday

Today started off like most lately.  I woke up feeling sick and in pain.  My stomach was cramping and feeling like I had eaten rocks the night before. I spent most of yesterday eating as much as I could handle since I’m trying desperately to gain precious weight back.  My body ached and did NOTContinue reading “Another Friday”