Living Life 2 hours at a Time

There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.Continue reading “Living Life 2 hours at a Time”

Finding Happiness

I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise IContinue reading “Finding Happiness”

The All Too Familiar Sjogren’s Flare

For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. SomeContinue reading “The All Too Familiar Sjogren’s Flare”

Imprisoned Again

As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUSTContinue reading “Imprisoned Again”

Chronic Illness Doesn’t Rest for Christmas

Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I wokeContinue reading “Chronic Illness Doesn’t Rest for Christmas”

Foggy…

I’m very scattered today. Having trouble concentrating. I have a million tasks running through my head… things on my To-do list, but I can’t seem to get my act together to make it happen. I’ve walked in various rooms with intentions of doing something, then aborted mission and went back to my safe place onContinue reading “Foggy…”

Learning How to Save Myself…

I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearlyContinue reading “Learning How to Save Myself…”

My Not-So-Invisible Illness

I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as myContinue reading “My Not-So-Invisible Illness”

Leveling Up in the Disability Game

Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. IContinue reading “Leveling Up in the Disability Game”

I Put on a Bra Today!

You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was theContinue reading “I Put on a Bra Today!”