Tag: family
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Feeling Very Proud of Myself
Why am I so proud you ask? Well, last week I did a thing. I was independent and strong and I took 2 of my kids to the Museum of Natural History in NYC without Eddie coming to help me. It was a big trip for me to do without help. We had a 60 […]
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Vacation, Covid, then Flare
We recently returned from a 10 day family vacation. It was a lot of work, but enjoyable. Of course, I pushed myself too hard and I’m paying for it now. No surprise there. We’ve been back about 2 weeks now and half of us tested positive for Covid. It started with my youngest while we […]
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The End of Summer
Once again, I’ve waited far too long to write and give updates. Now I’m overwhelmed with what to write. So much to share… I’ll just start and see where it takes me. This was a great summer for me, yet I still have so much I wanted to do but didn’t get to for one […]
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I am Only Human
Yesterday I was sitting on my lounger next to the pool watching my 6 year old son and my 5 year old nephew swim together… I’m amused by their imagination as they make up random scenarios to act out together. It is early September and the weather is very mild. It is a comfortable […]
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Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by […]
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Ride the Wave…
I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This still […]
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It’s Time for a Change
*I apologize if this writing seems disorganized. The brain fog is real today. My chronic illness is winning. It took away my happiness and my will. I stopped pushing and trying because existing was just too hard. I gave up. Sjogren’s Syndrome had beat me. It won! Over the years, I’d slowly stopped doing things […]
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Finding Happiness
I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise I […]
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Snow Day!
Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such a […]
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Today was a Good Day
I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid […]
Surviving As Mom 