Tag: ecv

• Feeling Very Proud of Myself

  

  Why am I so proud you ask? Well, last week I did a thing. I was independent and strong and I took 2 of my kids to the Museum of Natural History in NYC without Eddie coming to help me. It was a big trip for me to do without help. We had a 60…

  Meredith Gallie

  September 27, 2022

  life

  anxiety, autism, autoimmune disease, blog, chronic fatigue, chronic illness, chronic illness mom, chronic illness warrior, chronic pain, confidence, disability, disabled, ecv, family, happiness, housebound, invisible illness, mental health, mindfulness, mom of 4, momlife, positivity, scooter, sjogrens, sjogrens syndrome, spoonie, unchargeable

• The End of Summer

  

  Once again, I’ve waited far too long to write and give updates. Now I’m overwhelmed with what to write. So much to share… I’ll just start and see where it takes me. This was a great summer for me, yet I still have so much I wanted to do but didn’t get to for one…

  Meredith Gallie

  November 8, 2021

  life

  anhydrosis, autoimmune, blog, chronic illness, chronic illness warrior, chronic pain, disability, disabled, disney, disneyworld, ecv, family, flare, heat intolerance, illness, invisible illness, mom of 4, prednisone, scooter, sjogrens, sjogrens syndrome, spoonie, steroids, summer, surviving as mom, sweat, vacation

• My Not-So-Invisible Illness

  

  I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…

  Meredith Gallie

  December 15, 2020

  life

  acceptance, anxiety, autoimmune, brave, cane, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, depression, disability, disabled, disease, ecv, hair loss, handicap, housebound, invisible illness, life, mobility aid, my story, scooter, sick, sjogrens, sjogrens syndrome, skinny, social anxiety, spoonie, ugly, unchargeable, weight loss

• Leveling Up in the Disability Game

  

  Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I…

  Meredith Gallie

  December 15, 2020

  life

  anxiety, autoimmune disease, brave, cane, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, depression, diary, disabled, ecv, handicap, invisible illness, life, mobility aid, mom, my story, scooter, shame, sjogens, sjogrens syndrome, spoonie, surviving as mom, unchargeable, wheelchair