Not a Happy Camper

*This post was written a week ago. I finally had time to post it today. I woke up a few days ago with a UTI and have been a mess ever since. The last few days I really struggled with my energy and have spent much of my time laying on the couch napping. TodayContinue reading “Not a Happy Camper”

Imprisoned Again

As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUSTContinue reading “Imprisoned Again”

Chronic Illness Doesn’t Rest for Christmas

Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I wokeContinue reading “Chronic Illness Doesn’t Rest for Christmas”

My Not-So-Invisible Illness

I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as myContinue reading “My Not-So-Invisible Illness”

Who Am I?

Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derailContinue reading “Who Am I?”