Not a Happy Camper

*This post was written a week ago. I finally had time to post it today.

I woke up a few days ago with a UTI and have been a mess ever since. The last few days I really struggled with my energy and have spent much of my time laying on the couch napping. Today for example I got my nails done in the morning. I sat in a chair for 30 minutes while somebody fiddled with my fingers and when I came home I was so exhausted I could not move. I didn’t have the energy to prepare or eat lunch so I skipped that meal. I laid on the couch and slept for about three hours waking up only to get my kids off of the bus. I came back in and laid down and have not been able to move. I had plans to make a very nice dinner but now I have zero energy and cannot make dinner. I’m dazed and confused, forgetful and not thinking very clearly at all. I’m hoping this will get better once I finish my antibiotics but my expectations are not very high. It’s likely that this infection has put me into a new flare. Every day I wake up hoping that I’ll feel better but so far it has not happened. I can tell immediately in the morning because I have to work really hard to drag myself out of bed and then I can’t wait to lay down again. Besides an upset stomach from the antibiotics I don’t actually feel sick yet. I am dealing with severe fatigue and weakness so that walking from one room to another feels like I’m climbing a mountain with a heavy backpack on. To say I’m disappointed and discouraged would be an understatement. I was really enjoying living life and behaving like a normal person. This shit is unfair! Why can’t I just be normal like everyone else? All I can do now is hope that this passes quickly so I can get back to living life before the summer is over. I’m not depressed yet but I know that it will happen if I continue this way for too long.

Let’s see what tomorrow brings…

Published by Meredith Gallie

My name is Meredith. I’m a mother of 4 boys living in NY on Long Island. I suffer from a chronic illness called Sjogren’s Syndrome. It is a debilitating autoimmune disease which has wreaked havoc on my body, causing me to become disabled and mostly housebound. Each day for me is about survival and caring for my children. My older boys are twins, one of which has autism. These are challenges that I must try to overcome each day, but I am thankful for my family. I’m thankful to have a loving husband who is able to help and provide a comfortable life for us. We are thankful for his hard work and dedication. I’m not a writer by any means, but I wanted to make this blog as an outlet for all the noise in my head, as well as something to focus on to keep my brain from melting into a pile of mush. I also hope my thoughts and experiences will help others out there with similar struggles. Some of my posts will be like a public diary, some will be advice and inspiration. Some posts will be dark and sad, some will be uplifting and inspiring. I’m just going to write according to whatever mood I’m feeling at the time. It’s a bumpy ride, but hopefully you find it helpful or entertaining. Enjoy!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: