Tag: autoimmune
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Trying to Live Life
It’s 8:23 PM on a Sunday. I’m sitting here eating one of my favorite “healthy” snacks which is apple slices dipped in caramel sauce with crumbled pecans. This has been one of my favorite desserts lately. Last week was busy. Hockey game in the city on Monday, errands everyday in between, concert in the city…
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The End of Summer
Once again, I’ve waited far too long to write and give updates. Now I’m overwhelmed with what to write. So much to share… I’ll just start and see where it takes me. This was a great summer for me, yet I still have so much I wanted to do but didn’t get to for one…
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Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by…
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Not a Happy Camper
*This post was written a week ago. I finally had time to post it today. I woke up a few days ago with a UTI and have been a mess ever since. The last few days I really struggled with my energy and have spent much of my time laying on the couch napping. Today…
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Rebirth after a Flare
I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I come…
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My Not-So-Happy Birthday
Tomorrow is my 40th birthday. I have mixed feelings about this. In the last 10 years or so, my birthday brings me sadness. There wasn’t any particular event that permanently ruined my special day. I try to be happy about the celebration of another year of life, but there is always a darkness, a heaviness…
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Life with Chronic Pain
Let’s talk about pain. Having a chronic illness comes with a lot of pain. For me, pain comes from a lot of sources including achy joints, muscles, bones, and even gastrointestinal problems. I also have the added complication of a spine that is totally F**ed. This means that pain is a constant companion for me.…
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The All Too Familiar Sjogren’s Flare
For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. Some…
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Foggy…
I’m very scattered today. Having trouble concentrating. I have a million tasks running through my head… things on my To-do list, but I can’t seem to get my act together to make it happen. I’ve walked in various rooms with intentions of doing something, then aborted mission and went back to my safe place on…
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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…
Surviving As Mom 