Tag: positivity
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Feeling Very Proud of Myself
Why am I so proud you ask? Well, last week I did a thing. I was independent and strong and I took 2 of my kids to the Museum of Natural History in NYC without Eddie coming to help me. It was a big trip for me to do without help. We had a 60…
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Wednesday Morning Thoughts
It’s 12:14 pm on Wednesday as I’m sitting at the kitchen table eating my breakfast. I’m enjoying a bacon and egg sandwich with my cup of tea. Chopin’s Nocturne No 1 in B Flat Minor plays around me. One of my favorites! I like to listen to classical music as I begin my day. It…
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Feeling Restless
*This was written a few weeks ago. I’m finally publishing it now. I feel restless. My mind craves something, but I can’t pinpoint it. It’s like my brain is starving for stimulus. I want to do lots of things but I can’t quite figure out what. I’m trying some new things hoping it’ll satisfy my…
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Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by…
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Ride the Wave…
I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This still…
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Rebirth after a Flare
I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I come…
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Consumed by Self Loathing
I decided today to make a list of the things I like about everyone in my family. I made a nice long list for each of my kids and my husband. I listed all the things I love and find special about each of them. It made me smile to think of all the ways…
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It’s Time for a Change
*I apologize if this writing seems disorganized. The brain fog is real today. My chronic illness is winning. It took away my happiness and my will. I stopped pushing and trying because existing was just too hard. I gave up. Sjogren’s Syndrome had beat me. It won! Over the years, I’d slowly stopped doing things…
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Finding Happiness
I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise I…
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Learning How to Save Myself…
I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly…