Ride the Wave…

I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This stillContinue reading “Ride the Wave…”

Living Life 2 hours at a Time

There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.Continue reading “Living Life 2 hours at a Time”

In Limbo

I seem to be stuck in some kind of sick limbo. I think I’m starting to come out of a months long flare. I say “I think” because I have been very inconsistent overall. One day I can feel good enough to be productive at home or even go out to the store. Another dayContinue reading “In Limbo”

Imprisoned Again

As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUSTContinue reading “Imprisoned Again”

Chronic Illness Doesn’t Rest for Christmas

Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I wokeContinue reading “Chronic Illness Doesn’t Rest for Christmas”