Tag: disability
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Feeling Very Proud of Myself
Why am I so proud you ask? Well, last week I did a thing. I was independent and strong and I took 2 of my kids to the Museum of Natural History in NYC without Eddie coming to help me. It was a big trip for me to do without help. We had a 60…
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Dec 28, 2021
Today is 3 days past Christmas and my house has officially been restored to non-holiday status. Its nice to see everything put away and the clutter removed, but now my house looks sterile and empty. Maybe tomorrow I’ll bring out some stuff from storage and do some simple non-holiday decorating again. In February I’ll decorate…
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A Life of Confusion…
At 40 years old I’ve discovered that I have Autism. There, I said it! I feel ridiculous saying it at all. But it is the truth. It has been my truth all along but I never knew it. This explains why I’ve always had so many problems with myself and why I’ve hated myself for…
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Trying to Live Life
It’s 8:23 PM on a Sunday. I’m sitting here eating one of my favorite “healthy” snacks which is apple slices dipped in caramel sauce with crumbled pecans. This has been one of my favorite desserts lately. Last week was busy. Hockey game in the city on Monday, errands everyday in between, concert in the city…
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The End of Summer
Once again, I’ve waited far too long to write and give updates. Now I’m overwhelmed with what to write. So much to share… I’ll just start and see where it takes me. This was a great summer for me, yet I still have so much I wanted to do but didn’t get to for one…
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Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by…
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Living Life 2 hours at a Time
There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.…
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The All Too Familiar Sjogren’s Flare
For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. Some…
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Learning How to Save Myself…
I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly…
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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…
Surviving As Mom 