Ride the Wave…

I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This stillContinue reading “Ride the Wave…”

Snow Day!

Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such aContinue reading “Snow Day!”

Learning How to Save Myself…

I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearlyContinue reading “Learning How to Save Myself…”

My Not-So-Invisible Illness

I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as myContinue reading “My Not-So-Invisible Illness”

Leveling Up in the Disability Game

Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. IContinue reading “Leveling Up in the Disability Game”

Who Am I?

Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derailContinue reading “Who Am I?”

Today was a Good Day

I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laidContinue reading “Today was a Good Day”