Today was a Good Day

I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid in bed until about 9:30. Laying around staring off into space for 2 or more hours is a little too easy for me. I’ve gotten very used to it after so many years of practice. As I laid there, I noticed that I didn’t feel too bad. This was strange. I felt awake, somewhat refreshed, and feeling fairly well. I got myself dressed in sweats and went downstairs to greet my children and start my day. I was in a pretty good mood too. I love waking up feeling ok, especially when the sun is shining.

My sister and her 2 sons were coming to visit me. They’d be here in about 2 hours. This was enough time for me to clean up a little and prepare for the chaos that comes with 6 boys under 12 years old. My kids are 5, 8, 11 & 11. Her kids are 4 and 6. I love it though. It reminds me of my childhood. Always surrounded by my 5 siblings and lots of cousins. My sister is 8 years older than me, and she’s my best friend. She’s pretty much the only visitor I get. She tries to come 1-2 times a month, depending on everyone’s schedule.

She brought bagels for everyone for brunch. I couldn’t eat them because I’m gluten free, but it was nice to see everyone enjoying them. Being gluten free for me is NOT a choice. I have what doctors refer to as “non-celiac gluten intolerance”. Basically, I get all the same symptoms of stomach pains, bloating, nausea, multiple bathroom runs, etc. that someone with celiac’s has, but I don’t have the visible damage to my intestines. I’ve been gluten free for about 3 years now. I am NOT a willing participant, but the consequences are unbearable for me. We’ll talk more about this topic another time.

Today was unseasonably warm. We enjoyed a sunny 61 degrees F, which is very warm in NY for mid December. I welcome a break from the cold temps. The cold makes my body ache. The 4 little boys played out front in the driveway riding scooters and skateboards down the slope towards my house. I sat outside with them to watch and to do some organizing in the garage. I like taking advantage of nice weather when I’m feeling well enough to do so. My sister joined us outside. We sat, chatted and enjoyed watching the kids. It was a wonderful change from my usual routine. I truly enjoy these moments.

Of course, all good things must come to an end. Around 3pm, my activity started to catch up to me and I was exhausted and in pain. My pain was mostly from my recent surgical wound. I did a little too much and I was paying for it. I spent the next few hours laying down to recover, but I don’t mind it too much today. I earned the right to feel like this after having such an enjoyable and productive day. I get more upset when I feel like this when I’ve done nothing at all. I can’t cook dinner tonight so it looks like its gonna be Dominoes pizza again. I used up all my energy, and I also forgot to defrost something from the freezer, so pizza it is. Of course I won’t be eating it. I’ll have to find something else to eat. Maybe one of my pre made frozen meals will have to do. It’s all good. I’m happy today. It was a good day.

Published by Meredith Gallie

My name is Meredith. I’m a mother of 4 boys living in NY on Long Island. I suffer from a chronic illness called Sjogren’s Syndrome. It is a debilitating autoimmune disease which has wreaked havoc on my body, causing me to become disabled and mostly housebound. Each day for me is about survival and caring for my children. My older boys are twins, one of which has autism. These are challenges that I must try to overcome each day, but I am thankful for my family. I’m thankful to have a loving husband who is able to help and provide a comfortable life for us. We are thankful for his hard work and dedication. I’m not a writer by any means, but I wanted to make this blog as an outlet for all the noise in my head, as well as something to focus on to keep my brain from melting into a pile of mush. I also hope my thoughts and experiences will help others out there with similar struggles. Some of my posts will be like a public diary, some will be advice and inspiration. Some posts will be dark and sad, some will be uplifting and inspiring. I’m just going to write according to whatever mood I’m feeling at the time. It’s a bumpy ride, but hopefully you find it helpful or entertaining. Enjoy!

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