Living Life 2 hours at a Time

There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.Continue reading “Living Life 2 hours at a Time”

Life with Chronic Pain

Let’s talk about pain. Having a chronic illness comes with a lot of pain. For me, pain comes from a lot of sources including achy joints, muscles, bones, and even gastrointestinal problems. I also have the added complication of a spine that is totally F**ed. This means that pain is a constant companion for me.Continue reading “Life with Chronic Pain”

It’s Time for a Change

*I apologize if this writing seems disorganized. The brain fog is real today. My chronic illness is winning. It took away my happiness and my will. I stopped pushing and trying because existing was just too hard. I gave up. Sjogren’s Syndrome had beat me. It won! Over the years, I’d slowly stopped doing thingsContinue reading “It’s Time for a Change”

Consumed by Self Loathing

I decided today to make a list of the things I like about everyone in my family. I made a nice long list for each of my kids and my husband. I listed all the things I love and find special about each of them. It made me smile to think of all the waysContinue reading “Consumed by Self Loathing”

It’s Only Hair…

…Except it’s so much more than that. Hair is such an important part of one’s identity. When you look at someone, you immediately notice a few things. Their face, their clothes, and their hair. Some people keep the same hair their whole life. Others change it frequently. They experiment with color, length, and various styles.Continue reading “It’s Only Hair…”

Finding Happiness

I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise IContinue reading “Finding Happiness”

In Limbo

I seem to be stuck in some kind of sick limbo. I think I’m starting to come out of a months long flare. I say “I think” because I have been very inconsistent overall. One day I can feel good enough to be productive at home or even go out to the store. Another dayContinue reading “In Limbo”

The All Too Familiar Sjogren’s Flare

For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. SomeContinue reading “The All Too Familiar Sjogren’s Flare”

Imprisoned Again

As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUSTContinue reading “Imprisoned Again”

Chronic Illness Doesn’t Rest for Christmas

Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I wokeContinue reading “Chronic Illness Doesn’t Rest for Christmas”