I’m Still So Amazed!

It’s been about 6 weeks since my last post, so I wanted to update everyone on my progress. I’m still feeling pretty good overall. I have good energy and living like a normal person. I do notice however that during my PMS time, I feel a little off. I don’t feel great and I need to rest often. It seems to be temporary and I start to feel better a few days into my new cycle. I can deal with that.

This next thing blows my mind. We just came back from a 7 day Disney World trip and I am still amazed that I felt great! Even bigger… this is my first trip since getting sick so many years ago that I did NOT need any steroids!! If you are a fellow chronic illness warrior, you should very much understand the significance of such a statement. I went on a week long active trip with my husband and children and did not need Prednisone! AND I felt great! On top of that, I was sick with real viruses during the week and still felt good.

The few days leading up to the trip I got a stomach virus and was very weak on the first travel day and into that night at dinner. By the next afternoon I started to feel more normal. Then, on the 3rd day I developed a cold and carried a box of tissues around the parks with me. The next day I felt pretty crappy because of the congestion, but I still carried on with the day and managed to have some fun. But I was happy to go back to my room that night. I got through those few days without cold medicine because I didn’t think to pack any. For the remainder of the vacation I was happy, energetic, and excited. I had a great time and was finally able to fully enjoy a family vacation. I used the scooter because my walking stamina isn’t fully there yet, but I did take some breaks to walk around a bit.

Eddie and I keep saying to each other how amazed we are at how well I’m doing. On my best days I end up crying to myself because I’m so overwhelmed with happiness! I feel like I’ve been cured! I feel like the luckiest person on the planet because my life is so much fuller and I’m so much happier now. For the first time in so many years I can look into my future and see so many possibilities and hope. Before I dreaded thinking about anything in the future because I didn’t see much of anything besides pain and sickness.

All I can do now is just focus and making my body as strong and healthy as possible so I can continue to live my life again. ❤️


4 responses to “I’m Still So Amazed!”

  1. I’m so happy for you and that you seem to have found long term solutions instead of just short spurts of feeling good.


    1. Thank you. I have doubts about this being long term, but I am hopeful. It’s all very experimental.


  2. I guess at some point you will have to change the name of your blog from “surviving as a mom” to “thriving as a mom” 😆


    1. That would be amazing.


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