Tag: chronic illness mom
-
Feeling Very Proud of Myself
Why am I so proud you ask? Well, last week I did a thing. I was independent and strong and I took 2 of my kids to the Museum of Natural History in NYC without Eddie coming to help me. It was a big trip for me to do without help. We had a 60…
-
Dec 28, 2021
Today is 3 days past Christmas and my house has officially been restored to non-holiday status. Its nice to see everything put away and the clutter removed, but now my house looks sterile and empty. Maybe tomorrow I’ll bring out some stuff from storage and do some simple non-holiday decorating again. In February I’ll decorate…
-
Trying to Live Life
It’s 8:23 PM on a Sunday. I’m sitting here eating one of my favorite “healthy” snacks which is apple slices dipped in caramel sauce with crumbled pecans. This has been one of my favorite desserts lately. Last week was busy. Hockey game in the city on Monday, errands everyday in between, concert in the city…
-
Summer Nights
My last post was all about feeling exhausted and fearing a flare. I can happily say that about a week later and I’m feeling pretty good, but a bit delicate. As long as I pace myself and rest often I can function, or at least have some fun. I am just taking it day by…
-
Ride the Wave…
I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This still…
-
Rebirth after a Flare
I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I come…
-
Chronic Illness Doesn’t Rest for Christmas
Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I woke…
-
It’s ok to be Unproductive Sometimes
I changed my clothes today after about a week. I’m still wearing sweats and no bra, but I feel like I look a little cuter; a little more stylish. Maybe I don’t, but I feel like I do so I’ll just go with it. I really do get tired of always looking like a slob.…