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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my […]
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Leveling Up in the Disability Game
Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I […]
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Who Am I?
Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derail […]
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Feed the Birds…
Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find […]
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Today was a Good Day
I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid […]
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I Put on a Bra Today!
You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the […]
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Fashion Choices during a Flare
I’ve been wearing the same clothes for 3 days now. I shower each night so I’m not dirty or smelly. I lay around all day so I don’t sweat or get dirty. I don’t leave the house or play outside, especially in the winter. I also don’t see anyone other than my husband and children, […]
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I Almost Died from a Hysterectomy
Dec 10, 2020 Today is three weeks since I’ve had my hysterectomy. I’m still recovering and quite sore. The surgery has also put me into a flare. I’m disappointed, but not surprised. Any trauma is not tolerated by my body and I pay the price for weeks to months afterwards. On November 19th, 2020 I […]
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Another Friday
Today started off like most lately. I woke up feeling sick and in pain. My stomach was cramping and feeling like I had eaten rocks the night before. I spent most of yesterday eating as much as I could handle since I’m trying desperately to gain precious weight back. My body ached and did NOT […]
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My Illness: the diagnosis
I have an autoimmune disease called Sjogren’s (Show-grins) Syndrome. I kind of describe it like a mix between Lupus, Rheumatoid arthritis, and MS. I was officially diagnosed at 32 years old in 2013 but I’m sure I’ve had it since I was in my early 20’s. I experienced many of my symptoms when I was […]
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Surviving As Mom 