Surviving As Mom

Life with Sjogren’s Syndrome

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  • It’s ok to be Unproductive Sometimes

    It’s ok to be Unproductive Sometimes

    I changed my clothes today after about a week. I’m still wearing sweats and no bra, but I feel like I look a little cuter; a little more stylish. Maybe I don’t, but I feel like I do so I’ll just go with it. I really do get tired of always looking like a slob. […]

    Meredith Gallie

    December 18, 2020
    life
    boymom, chronic fatigue, chronic illness, chronic illness mom, chronic illness warrior, chronic pain, disabled, friday, housebound, invisible illness, mom of 4, momlife, sjogrens, sjogrens syndrome, snow, spoonie, spoonie mom
  • Snow Day!

    Snow Day!

    Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such a […]

    Meredith Gallie

    December 18, 2020
    life
    autoimmune disease, chronic fatigue, chronic illness, chronic illness mom, chronic illness warrior, chronic pain, diary, disabled, family, family fun, flare, happiness, homebound, hope, invisible illness, mom, my story, sjogrens, sjogrens syndrome, snow, snow day, spoonie, the mighty, unchargeable
  • Learning How to Save Myself…

    Learning How to Save Myself…

    I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly […]

    Meredith Gallie

    December 16, 2020
    life
    advice, anxiety, buddhism, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, coping, diary, disability, disabled, hope, hopeless, housebound, how to, invisible illness, meditation, mental health, mindfulness, my story, peace, positivity, prayer, religion, save myself, sjogrens, sjogrens syndrome, spiritual, spoonie, suffering, unchargeable
  • My Not-So-Invisible Illness

    My Not-So-Invisible Illness

    I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my […]

    Meredith Gallie

    December 15, 2020
    life
    acceptance, anxiety, autoimmune, brave, cane, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, depression, disability, disabled, disease, ecv, hair loss, handicap, housebound, invisible illness, life, mobility aid, my story, scooter, sick, sjogrens, sjogrens syndrome, skinny, social anxiety, spoonie, ugly, unchargeable, weight loss
  • Leveling Up in the Disability Game

    Leveling Up in the Disability Game

    Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I […]

    Meredith Gallie

    December 15, 2020
    life
    anxiety, autoimmune disease, brave, cane, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, depression, diary, disabled, ecv, handicap, invisible illness, life, mobility aid, mom, my story, scooter, shame, sjogens, sjogrens syndrome, spoonie, surviving as mom, unchargeable, wheelchair
  • Who Am I?

    Who Am I?

    Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derail […]

    Meredith Gallie

    December 15, 2020
    life
    about me, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, disabled, introduction, invisible illness, mom, my life, my story, sick, sjogrens, sjogrens syndrome, spoonie, unchargeable, who am i
  • Feed the Birds…

    Feed the Birds…

    Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find […]

    Meredith Gallie

    December 14, 2020
    life
    birds, buddhism, chronic fatigue, chronic illness, chronic pain, coping, depression, disabled, happiness, housebound, invisible illness, isolation, loneliness, mindfulness, peace, positivity, sjogrens, sjogrens syndrome, spoonie, squirrels
  • Today was a Good Day

    Today was a Good Day

    I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid […]

    Meredith Gallie

    December 13, 2020
    life
    boys, chronic fatigue, chronic illness, chronic pain, diary, ditl, family, flare, good day, invisible illness, sjogrens, sjogrens syndrome, spoonie, unchargeable
  • I Put on a Bra Today!

    I Put on a Bra Today!

    You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the […]

    Meredith Gallie

    December 12, 2020
    life
    anxiety, chronic fatigue, chronic illness, chronic pain, disability, disabled, homebound, housebound, road trip, sjogrens, social anxiety, spoonie, spoonie mom
  • Fashion Choices during a Flare

    Fashion Choices during a Flare

    I’ve been wearing the same clothes for 3 days now. I shower each night so I’m not dirty or smelly. I lay around all day so I don’t sweat or get dirty. I don’t leave the house or play outside, especially in the winter. I also don’t see anyone other than my husband and children, […]

    Meredith Gallie

    December 12, 2020
    life
    antisocial, chronic illness, chronic pain, clothes, housebound, loungewear, sjogrens, sloppy
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