Tag: spoonie
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Learning How to Save Myself…
I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly…
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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…
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Leveling Up in the Disability Game
Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I…
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Who Am I?
Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derail…
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Feed the Birds…
Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find…
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Today was a Good Day
I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid…
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I Put on a Bra Today!
You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the…
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My Illness: the diagnosis
I have an autoimmune disease called Sjogren’s (Show-grins) Syndrome. I kind of describe it like a mix between Lupus, Rheumatoid arthritis, and MS. I was officially diagnosed at 32 years old in 2013 but I’m sure I’ve had it since I was in my early 20’s. I experienced many of my symptoms when I was…
Surviving As Mom 