Tag: sjogrens
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It’s ok to be Unproductive Sometimes
I changed my clothes today after about a week. I’m still wearing sweats and no bra, but I feel like I look a little cuter; a little more stylish. Maybe I don’t, but I feel like I do so I’ll just go with it. I really do get tired of always looking like a slob.…
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Snow Day!
Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such a…
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Learning How to Save Myself…
I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly…
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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…
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Who Am I?
Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derail…
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Feed the Birds…
Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find…
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Today was a Good Day
I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid…
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I Put on a Bra Today!
You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the…
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Fashion Choices during a Flare
I’ve been wearing the same clothes for 3 days now. I shower each night so I’m not dirty or smelly. I lay around all day so I don’t sweat or get dirty. I don’t leave the house or play outside, especially in the winter. I also don’t see anyone other than my husband and children,…
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Another Friday
Today started off like most lately. I woke up feeling sick and in pain. My stomach was cramping and feeling like I had eaten rocks the night before. I spent most of yesterday eating as much as I could handle since I’m trying desperately to gain precious weight back. My body ached and did NOT…
Surviving As Mom 