Surviving As Mom

Life after Healing from Sjögren's Syndrome

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  • Who Am I?

    Who Am I?

    Hello dear reader. My name is Meredith and I’m 39 (as of this post) living on Long Island in NY. I’m a mother of 4 boys. I also have an autoimmune disease called Sjogren’s Syndrome. About 8 years ago my life was derailed when I was diagnosed with Sjogren’s Syndrome. Well the diagnosis didn’t derail…

    Meredith Gallie

    December 15, 2020
    life
    about me, chronic fatigue, chronic illness, chronic illness warrior, chronic pain, disabled, introduction, invisible illness, mom, my life, my story, sick, sjogrens, sjogrens syndrome, spoonie, unchargeable, who am i
  • Feed the Birds…

    Feed the Birds…

    Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find…

    Meredith Gallie

    December 14, 2020
    life
    birds, buddhism, chronic fatigue, chronic illness, chronic pain, coping, depression, disabled, happiness, housebound, invisible illness, isolation, loneliness, mindfulness, peace, positivity, sjogrens, sjogrens syndrome, spoonie, squirrels
  • Today was a Good Day

    Today was a Good Day

    I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid…

    Meredith Gallie

    December 13, 2020
    life
    boys, chronic fatigue, chronic illness, chronic pain, diary, ditl, family, flare, good day, invisible illness, sjogrens, sjogrens syndrome, spoonie, unchargeable
  • I Put on a Bra Today!

    I Put on a Bra Today!

    You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the…

    Meredith Gallie

    December 12, 2020
    life
    anxiety, chronic fatigue, chronic illness, chronic pain, disability, disabled, homebound, housebound, road trip, sjogrens, social anxiety, spoonie, spoonie mom
  • Fashion Choices during a Flare

    Fashion Choices during a Flare

    I’ve been wearing the same clothes for 3 days now. I shower each night so I’m not dirty or smelly. I lay around all day so I don’t sweat or get dirty. I don’t leave the house or play outside, especially in the winter. I also don’t see anyone other than my husband and children,…

    Meredith Gallie

    December 12, 2020
    life
    antisocial, chronic illness, chronic pain, clothes, housebound, loungewear, sjogrens, sloppy
  • I Almost Died from a Hysterectomy

    I Almost Died from a Hysterectomy

    Dec 10, 2020 Today is three weeks since I’ve had my hysterectomy.  I’m still recovering and quite sore.  The surgery has also put me into a flare.  I’m disappointed, but not surprised.  Any trauma is not tolerated by my body and I pay the price for weeks to months afterwards. On November 19th, 2020 I…

    Meredith Gallie

    December 12, 2020
    life
    almost died, hysterectomy, near death, surgery
  • Another Friday

    Another Friday

    Today started off like most lately.  I woke up feeling sick and in pain.  My stomach was cramping and feeling like I had eaten rocks the night before. I spent most of yesterday eating as much as I could handle since I’m trying desperately to gain precious weight back.  My body ached and did NOT…

    Meredith Gallie

    December 12, 2020
    life
    autism, chronic pain, diary, momlife, sjogrens
  • My Illness: the diagnosis

    My Illness: the diagnosis

    I have an autoimmune disease called Sjogren’s (Show-grins) Syndrome.  I kind of describe it like a mix between Lupus, Rheumatoid arthritis, and MS.  I was officially diagnosed at 32 years old in 2013 but I’m sure I’ve had it since I was in my early 20’s.  I experienced many of my symptoms when I was…

    Meredith Gallie

    December 11, 2020
    life
    anxiety, autoimmune, autoimmune disease, chronic illness, chronic illness mom, chronic illness warrior, chronic pain, diagnosis, disability, disabled, disease, illness, invisible illness, mental health, sjogrens, spoonie
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