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In Limbo
I seem to be stuck in some kind of sick limbo. I think I’m starting to come out of a months long flare. I say “I think” because I have been very inconsistent overall. One day I can feel good enough to be productive at home or even go out to the store. Another day…
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The All Too Familiar Sjogren’s Flare
For me, a flare comes in many shapes and sizes. It is constantly evolving and always keeps me on my toes. I wake up each morning wondering what symptoms today will bring. My symptoms in general vary greatly. An autoimmune disease such as Sjogren’s Syndrome comes with many varying symptoms. Some come and go. Some…
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Imprisoned Again
As I’ve mentioned in previous blog posts, I am mostly homebound. I say mostly because its not quite 100%. I’d feel like I was being dramatic by claiming I am fully homebound. This is because on rare occasions I do actually leave the house. Usually its only for doctor appointments or when I absolutely MUST…
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Chronic Illness Doesn’t Rest for Christmas
Yesterday was Christmas day. We all woke up at 6am and had a great time opening presents and just being together as a family. The kids had a great time and I enjoyed seeing their happiness. It also happened to be a terrible day for me. My body was fighting me very hard. I woke…
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Foggy…
I’m very scattered today. Having trouble concentrating. I have a million tasks running through my head… things on my To-do list, but I can’t seem to get my act together to make it happen. I’ve walked in various rooms with intentions of doing something, then aborted mission and went back to my safe place on…
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It’s ok to be Unproductive Sometimes
I changed my clothes today after about a week. I’m still wearing sweats and no bra, but I feel like I look a little cuter; a little more stylish. Maybe I don’t, but I feel like I do so I’ll just go with it. I really do get tired of always looking like a slob.…
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Snow Day!
Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such a…
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Learning How to Save Myself…
I wanted to write this blog to share something that has truly helped me during my darkest times. I was drowning in pain, depression, hopelessness, and despair and I needed to find a way to save myself. This is how I’m doing it. Its true that when you are sick, tired, and in pain nearly…
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My Not-So-Invisible Illness
I’ve always referred to my chronic health problems as my “invisible illness”. In a lot of ways it is invisible. In general, I appear to be a normal, healthy 39 year old mother of 4. This is especially true for the rare times that I feel good. However, over the last few years as my…
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Leveling Up in the Disability Game
Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I…
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Surviving As Mom 