Tag: chronic fatigue
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Ride the Wave…
I think I’ve definitely come out of my long winter flare and I am enjoying every second of feeling (almost) normal before its over. I think I’m currently at my peak. Keep in mind that a peak for me is about 85-90%, compared to a healthy person at 100%. I won’t complain though. This still…
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Rebirth after a Flare
I’m happy to admit that I have been feeling pretty good lately. I finally came out of my flare about a month ago, and I’m so happy. It always feels like a rebirth. Like I woke up out of a months-long coma. This seems to be a pattern each year in the spring. I come…
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Happy 420 Everyone!
Today is April 20th, aka 420, aka the day of celebration for stoners everywhere. I think this is a good time to talk about a subject that is becoming less taboo in recent times. Marijuana, pot, weed, 420, cannabis, reefer, grass, and the many other names that are used to describe a delightful little plant…
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Living Life 2 hours at a Time
There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.…
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My Not-So-Happy Birthday
Tomorrow is my 40th birthday. I have mixed feelings about this. In the last 10 years or so, my birthday brings me sadness. There wasn’t any particular event that permanently ruined my special day. I try to be happy about the celebration of another year of life, but there is always a darkness, a heaviness…
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Life with Chronic Pain
Let’s talk about pain. Having a chronic illness comes with a lot of pain. For me, pain comes from a lot of sources including achy joints, muscles, bones, and even gastrointestinal problems. I also have the added complication of a spine that is totally F**ed. This means that pain is a constant companion for me.…
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It’s Time for a Change
*I apologize if this writing seems disorganized. The brain fog is real today. My chronic illness is winning. It took away my happiness and my will. I stopped pushing and trying because existing was just too hard. I gave up. Sjogren’s Syndrome had beat me. It won! Over the years, I’d slowly stopped doing things…
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It’s Only Hair…
…Except it’s so much more than that. Hair is such an important part of one’s identity. When you look at someone, you immediately notice a few things. Their face, their clothes, and their hair. Some people keep the same hair their whole life. Others change it frequently. They experiment with color, length, and various styles.…
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Finding Happiness
I am a work in progress. Especially in the last 2 years. I am (almost) always working to improve myself somehow. I can’t do much improvement on the physical part, but I can focus on the mental, emotional, spiritual, and social parts of myself. I find it important to set goals for myself. Otherwise I…
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In Limbo
I seem to be stuck in some kind of sick limbo. I think I’m starting to come out of a months long flare. I say “I think” because I have been very inconsistent overall. One day I can feel good enough to be productive at home or even go out to the store. Another day…
Surviving As Mom 