Tag: chronic illness
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Feed the Birds…
Being stuck at home all the time is horribly boring and isolating. Even though I live with my husband and 4 children, I am still terribly lonely. The loneliness is excruciating! I crave human interaction, even though I often can’t handle much of it. It’s easy to get sucked into depression, and I often find…
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Today was a Good Day
I woke up at 7:30am to give Lucas his morning meds. I went back to bed but couldn’t fall asleep. I just laid there, looking out my window at the sunrise. It was a beautiful clear morning. The sky was pink, orange, and blue. What a difference from yesterday’s thick fog and clouds. I laid…
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I Put on a Bra Today!
You read that right. Today I put on a bra to… wait for it.. Leave the house! That’s right. I actually went out today, and for more than just a quick 15 min store run. I put on real clothes, including a bra and jeans. I even put on makeup and jewelry. What was the…
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Fashion Choices during a Flare
I’ve been wearing the same clothes for 3 days now. I shower each night so I’m not dirty or smelly. I lay around all day so I don’t sweat or get dirty. I don’t leave the house or play outside, especially in the winter. I also don’t see anyone other than my husband and children,…
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My Illness: the diagnosis
I have an autoimmune disease called Sjogren’s (Show-grins) Syndrome. I kind of describe it like a mix between Lupus, Rheumatoid arthritis, and MS. I was officially diagnosed at 32 years old in 2013 but I’m sure I’ve had it since I was in my early 20’s. I experienced many of my symptoms when I was…
Surviving As Mom 