Tag: autoimmune disease
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Living Life 2 hours at a Time
There’s this idea out there that if you (…or I) just think positive, then whatever is ailing us will just magically disappear. Like “have you tried not thinking about it?” or “You just need to be more positive”. As if the reason for my pain and illness is because I think about it too much.…
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It’s Only Hair…
…Except it’s so much more than that. Hair is such an important part of one’s identity. When you look at someone, you immediately notice a few things. Their face, their clothes, and their hair. Some people keep the same hair their whole life. Others change it frequently. They experiment with color, length, and various styles.…
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In Limbo
I seem to be stuck in some kind of sick limbo. I think I’m starting to come out of a months long flare. I say “I think” because I have been very inconsistent overall. One day I can feel good enough to be productive at home or even go out to the store. Another day…
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Snow Day!
Yesterday was our first big snow of the season. We had a Nor’Easter which gave us about 7 inches of fresh, fluffy snow. I love the snow but only when I don’t have anywhere to go. This is also the first snow in our new house. The landscape is absolutely gorgeous! We have such a…
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Leveling Up in the Disability Game
Like many people who suffer from a chronic illness, I require the use of mobility aids. I had a very hard time admitting this to myself. I was admitting defeat. I couldn’t function like everyone else anymore. I had to accept a new term to describe myself; DISABLED. It hurt! I couldn’t accept it. I…
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My Illness: the diagnosis
I have an autoimmune disease called Sjogren’s (Show-grins) Syndrome. I kind of describe it like a mix between Lupus, Rheumatoid arthritis, and MS. I was officially diagnosed at 32 years old in 2013 but I’m sure I’ve had it since I was in my early 20’s. I experienced many of my symptoms when I was…
Surviving As Mom 